June 20, 2015
1 Year, 7 months and 30 days since
the event.

Join us on June 20, 2015 as we come together for the 6th annual Race for Rylie event; an event to benefit the Pitt Hopkins Research Foundation.

Pitt Hopkins Syndrome (PTHS) is an extremely rare genetic condition caused by a mutation or deletion of the TCF4 gene on chromosome 18. It is estimated that PTHS occurs in about 1 in every 34,000-41,000 live births. To learn more information about Pitt Hopkins Syndrome, please visit our website at www.pitthopkins.org.

The mission of the Pitt Hopkins Research Foundation is to support research dedicated to finding a treatment, and an eventual cure for Pitt Hopkins Syndrome. Race for Rylie is an important annual fundraiser for the Pitt Hopkins Research Foundation. Please click on this link to learn more about our current research studies: http://pitthopkins.org/causes/current-sponsored-research/ 

To see how you can be a part of our efforts and learn more about your local family's story, please click on RYLIE'S STORY on the left navigation bar. We hope you will take part in this very special event!

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