Join us on Sunday, June 25, 2017 as we come together for the 7th annual Race for Rylie event; an event to benefit the Pitt Hopkins Research Foundation.
Pitt Hopkins Syndrome (PTHS) is an extremely rare genetic condition caused by a mutation or deletion of the TCF4 gene on chromosome 18. It is estimated that PTHS occurs in about 1 in every 34,000-41,000 live births. To learn more information about Pitt Hopkins Syndrome, please visit our website at www.pitthopkins.org.
The mission of the Pitt Hopkins Research Foundation is to support research dedicated to finding a treatment, and an eventual cure for Pitt Hopkins Syndrome. Race for Rylie is an important annual fundraiser for the Pitt Hopkins Research Foundation. Please click on this link to learn more about our current research studies: http://pitthopkins.org/causes/current-sponsored-research/
To learn more about Rylie, please click on RYLIE'S STORY on the left navigation bar. We hope you will take part in this very special event!
WE WOULD LIKE TO THANK OUR 2017 SPONSORS:
DJ Rob Reilly/Ultra Sonic Audio
Amplifier Research Corporation
Ardvark Sports Shop
Bodacious Hair & Body
Giant Food Stores
TRADEmark Waste Solutions
Tic Toc Family Restaurant